It has been quite an eventful week or so. We have been waiting impatiently to have Danikah assessed as to her problem and get her on the right track. We have had many sleepless nights where I find myself in tears (quietly) so not to wake daddy but I don't know how to help her. Things are changing with her and for the most part it is very hard to put into words. She used to sleep through the night or have one feeding but ever since we tried food and really introduced formula to help fill her up.....she is different. She used to vomit the food but Kevin and I have noticed that after a bottle of formula she brings it back up and it is really curdled. She moans after a bottle feeding and just can't settle to go to sleep. It sounds very simple and she just has a tummy ache but it is more than that to us. We taped her last night sleeping on Kevins' shoulder and the breathing was awful but she is not sick. This has been an issue since she was born. She did not cry after birth like most babies and she didn't cough up all that mucous. She barely sneezed to get it out either. The nurses tried to get her to cry but no luck. She was very quiet if I do say so myself...my other girls were criers. She has been weezy since birth and when it concerned us ....it didn't concern Dr.'s. Everytime someone would hold her they would ask why she breathed that way and my answer was .."They say it is normal" Well what if it isn't. What if something is blocking her in some way. I hate this.
We got a call from a peadiatrician yesterday that wants to see Dani on Thursday morning at her clinic at the hospital. She is the same peadiatrician that looked after Lexingtyn with her heart defect. I am confident now that we have her she will do what is needed to figure this out.
I am hoping we can have some answers soon as her and I need some sleep. We are back to just strictly nursing and there is no spit up or vomiting so she is better for now. I was working on weaning her off since i have to have surgery in September and thought if she was used being away from me a bit ( which she is attached to my hip these days) it would make my 3-4 day hospital stay a little easier on her and me. I won't be able to pump the first day or so in the hospital due to me being out of it and I refuse to engorge and go through that. We ( Kevin and I ) decided it would be easier to have her weaned and make both of us comfortable. The only thing that she isn't throwing up is breastmilk.....there goes that plan.
When you have a houseful of four little ladies...making my hospital stay and my absence a little easier for them to take makes me happy. Gracelynn has anxiety when I have to be hospitalized and I hate to upset any of them. More stress for me...YEAH!!! Not to mention Kevin is on his own back and forth to the hospital and home and the girls will want to see me. He is very capable ....I have no worries about that...he is an awesome dad. I just think it will be a big job since we usually help each other and I am going to b useless for a few days at least.
To add to my plate my dad is sick and we just found out. I won't go into great detail to respect his privacy but things do not look very good and we don't know what will happen or how long we have him for but I am scared. When it rains it pours.......
I will say that I am very blessed to be married to an unbelieveable man and I am so glad to go through this with him by my side. My girls are amazing and I would do and will do anything for them.......they are my world.
Please say a prayer for my Danikah and for my dad who has a very big battle ahead of him. May both of you be well again!!!!
Nicole
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