We arrived at the hospital this morning and sat in the peads waiting room with anxiety as to what was to come and what we would learn about our Dani. Lexingtyn was with us and she was playing like we took her to a new play place and had no idea we were in a hospital. She met a little guy who was there to have surgery today ( for what I do not know) but she kept saying "Hi , buddy" it was so cute.
We went in to see the Dr. and she was very thorough. She asked us tons of questions. I think it drew her a very clear picture of our concerns. She does not think it is allergies and leaning towards a narrow esophagus. She believes that thin liquids can get by but nothing with consistency. She wants the speech therapy department to look at her and perform a " modified barium" She will drink some breastmilk, formula, and eat some solids and they will be watching her esophagus to see if it is too narrow for food to pass by. This would be why she throws up so violently. She does think she has reflux to an extent and has prescribed her Ranitidine ( Zantac).
This will be investigated further with the tests. This is being scheduled as we speak and I will get an appt to get this done ASAP. After this is done and it is discovered that yes she has a narrow esophagus....it will be explained to us what that means and what can be done. If this is not the case she will talk to us about the next step in the process to figure out why she is like this. She is also concerned about the wheezing that she does and thinks it has something to do with this and may have been a red flag when she was born......
She did explain that her not wanting to swallow or acting as if she can't swallow is more like a trigger to say the drain is blocked and it won't go down. We saw the red flags and knew something wasn't right and we are great advocates for her.
We are very optimistic that she will get to the bottom of this and make Dani better or point us in the right direction to who can fix it.
On a better note she is gaining weight and lots of it. Since her appt two weeks ago she was 17 lbs 14ozs and today she is 18lbs 9ozs. She is 27 1/2 inches long. This is good for her but bad for us!!! She is up every hour and a half to nurse day and night. She is craving something heavier and needs food. Yes she is getting awesome nutrition from breastmilk.......but.......she isn't sleeping properly for her age and she was sleeping wonderfully until this happened...so she is capable of sleeping through the night because she was before. Her body needs other nutrients to get a good sleeping pattern and feed her muscles and bones the other things they need. Plus the breastmilk isn't filling her up anymore and she needs something heavier to sleep longer at night. She is very active and I know breastmilk is awesome and that is why I do it but you can't live on breastmilk. There comes a time for every kid that more is needed and she needs more.
I can't wait to see how the meds assist her and how her tests help us figure out her diagnosis.
say a prayer this is over sooner than later....my Danikah is hungry!!!! LOL!!!
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