I need to back up a few days because they have been such a nightmare I could just scream...I am so tired and apologize for not updating this blog. I know I have people know that are following that I have never met and I am so thankful for your support so bear with me as I get this all out there.
The Ranitidine was suppose to be a bandaid for her reflux and it has caused more problems...Dani was waking up due to acid reflux in the middle of the night ( like 3-4 times to nurse) We started the meds and she started sleeping longer and it was like we had a miracle happening. That lasted a few days and then the problems came. She started waking up more in the night but refusing to nurse and just crying and moaning. I started to notice the longer intervals between bowel movements ( although they were still soft) and then all hell broke loose. The constipation started late last week and I know that it is the meds. The sleeplessness was a symptom and so is the constipation. She is waking up screaming instead of a slow wake up like she used to do. She refuses any food and she just moans and wants to be rocked...eventually falling asleep only to wake less than and hour later sometimes twice and hour. I can't do this anymore, seriously. she won't eat because she is so bound up. I can't give her prunes or any other solids to get it to move because I was told no foods. I tried apple juice and nothing. I cried so hard the other day when she tried to go and I had to assist her and she screamed so hard and held her breath....It was so bad she bled. So now we have no spitting up or vomiting but now she can't poop and can't sleep....did not solve the problem!!!!!
Now to catch up to today.....
Getting ready for all this today was really crazy trying to get four very high strung girls out of the house. I went over to grandmas and dropped off Emma, Gracie & Lexi to play and spend some time with Kevin's mom. Danikah and I headed to the hospital. Every nurse or Dr.in the place stopped to talk to Dani and kept telling her she was very beautiful. A nice way to help mom relax before the big test. Michelle ( our assessment nurse) came out and talked to me about what was going to happen and got some of what we brought. She asked how the meds were working and she looked concerned...not only does the ranitidine cause constipation.....so does the barium test. She said she would try and use as little as possible. Michelle went and added the barium and then a few minutes later ( after 20 more nurses stopped to talk to Danikah) Michelle came back out with her chair and we got started. Danikah did amazingly well for her test. It was concluded there is nothing wrong with her esophagus and she swallowed just fine. The radiologist was concerned about how she swallowed and think it is more of an upper GI problem. We got unstrapped from the chair and went back out into the hall and she threw up. Gagged and everything. The nurse was floored..and was like...that didn't take long.
I tried to give her her bottle before we left and tried to get her home before she did it again. She refused the bottle. To this point the last bottle she had was at like 4 am when she finally ate for me. Now it is noon and she won't eat. we come home and from what I can make from it....she is cramping and screaming in pain from the food and barium. Here we go again.......
She screamed the whole way home. I tried the bottle at home and she refused. She just cried and wanted to be rocked.She calmed down long enough for me to set her down on the floor so I could use the washroom and as I returned she was pushing and trying to go to the bathroom. I ran ,picked her up and had to help her again. I won't even go into how bad it was...it was just bad. She just sobbed on me after and from then which was 2pm till almost 3:30pm she was so uncomfortable. She finally curled up into a ball in my lap and fell asleep and i was able to put her in her bed. That is why this took so long to get on here.
I want my baby fixed...I want her to be healthy and happy, I want her to feel refreshed after getting the sleep she needs. I want to enjoy all my children without feeling like a zombie with no energy. It is summer...we should be out enjoying our time and we just can't because Danikah is in such a bad place.
The part that sucks the most is....she wants food so bad...she cries when we eat and not share. She doesn't see the paediatrician until next Wednesday. Then a upper GI will be ordered, which could take a few weeks and then follow up again.........
How much more does this sweet pea need to endure before they figure it out?
She wants my hugs and they seem to help so I am just going keep doing what works...LOVE!!!!!
Nicole
3 comments:
I am a mom from the babycenter board. I've been following your blog and i just feel heart broken for you. I really do hope she gets better soon, and that some one can help her and find out what she needs. I cant even say that i understand what you're going through, but ill have you and her in my thoughts and prayers.
I'm another mom from the babycenter board, your poor little munchkin... I hope it doesn't take too long for the next test, there is nothing worse than waiting but know you are doing the best you can for her right now.
Tania
I am also a mom from babycenter. Unfortunately, I have been through the same exact scenario with the bowel movements with my daughter. The crying, screaming, pain, everything. It is the most gut-wrenching pain I've seen her in. We spent nearly 9 months trying to find relief for her and finally have found that Miralax, which is available over the counter is giving her relief. Her pediatrician has me giving her a half capful twice a day in juice/bottle/etc. I only mention this as I was at my wits end, ready to quit, beaten down and had no where to turn when this remedy was presented to us by a new pediatrician we went to desperate for help. My daughter is also easily affected by medicines such as ceftin and cannot miss a dose or she is bound up again. I hope your poor daughter and you can find something to give her relief. Praying for you.
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